Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

27 September 2008

Was this evil?

The following story is edited from the BBC News website

http://news.bbc.co.uk/go/pr/fr/-/1/hi/wales/7631234.stm: 2008/09/23 14:33:28 GMT

http://news.bbc.co.uk/go/pr/fr/-/1/hi/wales/7631734.stm: 2008/09/23 15:55:25 GMT


A 32-year-old woman has been found guilty of murdering her four-year-old disabled daughter.

Joanne Hill, from Connah's Quay, in Flintshire, had admitted drowning Naomi in the bath last year but denied murder due to diminished responsibility. Hill was jailed for life with a minimum term of 15 years. Chester Crown Court was told she had been unable to cope with Naomi's mild cerebral palsy.

Naomi's father Simon Hill described his wife's actions as "evil".

During the two-week trial, the jury heard hard-drinking Hill was ashamed of Naomi's condition, which meant the little girl had to use callipers to help her walk.

Judge Elgan Edwards told Hill there was no excuse for what she did. He said the aggravating features in the case were the vulnerability of Naomi and the breach of trust between a mother and daughter. He said: "You killed your own daughter because you could not cope with her disability. You had other pressures upon you, a disintegrating marriage and you decided to kill your own daughter by drowning her."

Because of the murder conviction Hill will not return to a secure unit but go straight to prison, the judge said. He commented on Hill's "sad" history of mental health problems and said he hoped she would be transferred back to hospital very soon. He added: "This has been a very sad case. Sad for you, for your husband, for the child you killed. "There can be no excuse for what you did."

On 26 November, 2007, Hill collected Naomi from a child-minder and took her home. The court heard how Hill had run a bath, adding bubble bath and came down for a glass of wine. When the bath was full, Hill put her daughter in the bath and drowned her by holding her head under the water for up to 10 minutes. The post-mortem examination found Naomi had died by drowning and also found facial haemorrhages which pointed to the girl's head being forcibly held under water with her face against the surface of the bath. Hill then dressed the little girl and put her in her car together with a bottle of wine before her husband returned home from work. She then drove around for eight hours.

The following day, Hill arrived at the Countess of Chester Hospital with her dead daughter in her arms, shouting for help.

The court heard how it was unclear what Hill was doing in the eight hours leading up to her arrival at hospital with Naomi dead in her arms. Police established she visited a petrol station at about 2330 BST that night and the jury were shown CCTV footage of her smiling and joking with the sales assistant.

Speaking after Hill was convicted by a unanimous jury, her husband Simon said: "Joanne is a non-swimmer with a fear of water. To be held under water is her biggest fear. "What she did to my princess Naomi was evil. There's not a minute that goes by without me wishing that [Naomi] was still here. She was my constant companion, she was my best friend, she was my little princess."

Hill's mental health issues first became apparent in the early 1990s when, aged 17, she saw a child psychiatrist for anxiety and repetitive thoughts. In 2000, she attempted suicide and throughout the year she was prescribed a medication for anxiety, depression and sleeplessness. In January 2003, shortly before Naomi was born, Hill was diagnosed with chronic anxiety and immediately afterwards, suffered a severe form of post-natal depression.

In a statement North Wales NHS Trust said a full review was to be conducted under the control of the Flintshire Local Safeguarding Children's Board. "Until these formal processes have concluded it would be inappropriate for the trust to make any detailed comment and the trust is also bound by the rules of patient confidentiality," the statement read.

A spokeswoman for the disability charity Scope, which focuses on people with cerebral palsy, said they were "saddened and appalled by this case". "Naomi's death is a tragedy," Alice Maynard said. "However, this case raises the wider issue of how many disabled parents still don't get the support they need in bringing up children and how society continues to portray disability in a negative light, creating shame and stigma around impairment. "Tragically, in this instance, this combination of factors proved lethal."

The jury in the trial of Joanne Hill, who has been convicted of murdering her disabled daughter, had a crucial decision to make about the 32-year-old's state of mind.

Hill, of Connah's Quay, Flintshire had killed four-year-old Naomi but the jury had to decide whether she was ill on the day she killed her daughter.

The defence case rested on proving that Hill, who had a history of mental health problems, was suffering "an abnormality of mind" when she drowned Naomi in the bath.

But Michael Chambers QC, for the prosecution, said Mrs Hill's behaviour in the months and days leading up to the killing had been considered normal and rational.

He said Hill should be found guilty of murder, rather than manslaughter by reason of diminished responsibility, because she had made a "deliberate and conscious" decision to kill her daughter.

Naomi was disabled, having mild cerebral palsy, and Hill could not cope with it, claimed the prosecution.

But deciding whether somebody is mentally ill at a particular time is a complex task.

During the trial at Chester Crown Court, Dr Aideen O'Halloran, a consultant forensic psychiatrist, said Hill's behaviour in the weeks leading up to Naomi's death indicated she was having a relapse of her mental health condition.

The court was told Hill had a history of mental health problems which first became apparent in the early 1990s when she was 17 years old and saw a child psychiatrist for anxiety and repetitive thoughts.

In 2000, Hill twice attempted suicide and throughout the year she was prescribed medication for anxiety, depression and sleeplessness.

In January 2003, shortly before the birth of Naomi, Hill was diagnosed with chronic anxiety and the following April, she had a "hypermanic" episode.

After Naomi was born ten weeks prematurely in a "difficult" birth, Hill suffered a severe form of postnatal depression, although she did respond to treatment.

On Boxing Day 2006 she suffered a severe relapse and left the family home to be cared for by her parents.

Once again Hill recovered, returning to work part-time in the March and full-time a month later.

In June, doctors decided there was no need for further involvement by her local Mental Health Team and in August her case was closed, although she remained under the care of her GP and on several types of medication.

In November, it was recorded that she was drinking heavily, increasing the risk of depression and the likelihood that she would stop taking her medicine.

Later that month she killed Naomi.

Dr O'Halloran concluded that Hill was suffering from depression and was able to "disassociate" her feelings, a combination that was "an abnormality of the mind" in her view.

But Dr Paul Chesterman, a consultant forensic psychiatrist, told the jury Hill's actions had not suggested a mental disorder at the time of the killing last year.

Hill had enjoyed a night out and had sex with a workmate on the Thursday before Naomi was killed, behaviour that Dr Chesterman said was "incompatible" with clinical depression.

Away from the trial, Gordon Huntley from the charity Wrexham Mind office sympathised with the jury's difficult task.

"When it comes to mental health it's far more difficult. When it's a physical illness, it's quite visible," he said.

"With mental health it's not quite so easy because the person doesn't necessarily understand what's going on themselves.

"It can be really difficult for jurors to come to any sort of understanding, let alone decision, about why somebody might want to do something like that."

And the complexity of the issue can lead to very different conclusions, even from experts, about a person's state of mind.

"I don't always agree with some of my colleagues in health on occasions," said Mr Huntley.

"I work closely with them and I'm quite friendly with a number but they do face quite difficult decisions in terms of what is happening to an individual.

"'What diagnosis do I give them and therefore what treatment can I give them or is available, is it the right one?'

"It's quite difficult and can be quite a lonely position for them to carry that burden."

Mr Huntley said it was also incredibly difficult to predict whether somebody with a history of serious mental health problems was likely to commit an extreme act.

"The stigma that people face with mental health issues is significant but it's not warranted, but unfortunately there are incidents that lead to tragic circumstances," he said.

"While for the vast majority, that's not the case, there are some of those events and sometimes people fall through the gaps."

08 October 2007

On making fun of disability

At the end of the daily electronic newsletter of the BBC's flagship current affairs programme, Newsnight, some weeks ago, was printed a 'joke' about Van Gogh having severed his ear. I found the 'joke' to be in very poor taste, for the reasons set out below, and wrote the following in the Newsnight weblog feedback.

I found the Van Gogh 'joke' offensive: it colludes with people who laugh at my uncle as "foot-loose" because his foot was amputated as a result of advanced diabetes; with the people who laugh at injured war veterans being "legless" or "'armless "; with people who mock the spasms associated with cerebral palsy; with people who laugh at the disturbing effects of mental health problems. Making these circumstances into 'jokes' might relieve tension in those not directly impacted by disability, but it also brazenly stigmatises. There is so much in life at which to laugh without any need to descend to stigmatising.



I recently read a report on a BBC news webpage 'Humour comes from testosterone' about some research recently carried out that concluded that much humour is sublimated aggression.

20 November 2006

Infanticide (de facto)

Guidance recently issued to hospital paediatric units by the BMA (British Medical Association) upset me. It is proposed that UK babies born at 22 weeks or earlier should not be resuscitated because their chances of survival are only one per cent, and the likelihood of a surviving child being disabled is high.

Had I only a one per cent chance of living, I would take it without hesitation. I find it hard to believe that few people would say differently. If my daughter had a one per cent chance of survival, I would do all in my power to provide her with that chance.

It would appear obvious, therefore, that the issue for the BMA is not about the chances of survival but that the cost of intensive neonatal medical care is considered too high to make the expense worthwhile. I accept that there are prices that may not be worth paying for a human life, or even the chance of a human life: the sacrificial death of other people; a Chernobyl-scale environmental disaster; or the destruction of a national art gallery or national cultural / world heritage site. However, people, companies and governments the world over spend millions of pounds, euros, dollars and yen on armaments, on base entertainment and on conspicuous consumption. Whilst it would be fair to argue over the merits or otherwise of goods and services bought and sold the world over, a medical policy of refusing to save the life of a prematurely-born child in order to economise on resources seems to be turning medical ethics upside down.

I do not believe that whether a child is likely to be born disabled should be a consideration regarding whether to save the child's life. If the issue is about cost, the financial expense of caring for that child through life would be a drop in the ocean compared to building and launching a military satellite, making a blockbuster movie, or a constructing a cruise liner. However, maybe there is an implicit belief that the life of a disabled child is a life blighted. ("The child would be sensorily impaired, be in constant pain, and have a poor quality of life. We'd be doing it a favour, putting it out of its misery. Were it a dog we'd have little hesitation about putting it down.") It would be interesting to find out the differential suicide rates for disabled and able-bodied people: I doubt that there is much difference (I am ready to be corrected). Maybe the BMA's concern is for the inconvenience to blameless parents of being saddled with a child requiring medication several times each day; additional attention to needs; specialist care, equipment and schooling.

I have a strong belief that societies the world over are better, richer, more humane societies because of the engagement required of them to care for children and young people, older people, people with a learning disability, physically disabled people, people whose health is frail, emotionally vulnerable people, people who live on the edge. Societies that most of all prize and reward strength and excellence, and strive towards conceptual ideals and ideas of perfection, risk losing touch with warm humanity. It seems to me that the UK is already quite some way along that cold path.

I recognise that for many people the term 'family' is problematic, perhaps because of abuses that have taken place within their family. However, I like the term when used more broadly to refer to a group of people who struggle together to make life work. To quote from Lilo and Stich: "Family means no-one gets left behind." For me, that means no-one.

04 August 2005

BBC Video Nation short film

We have just finished making a short film for the BBC Video Nation project. The film, which is online at:

http://www.bbc.co.uk/tyne/videonation/stories/jemima.shtml

is a peep-hole through which to glimpse some aspects of my daughter's life. The film was edited by Andrew Jeffrey, a producer at the BBC in Newcastle. Andrew also offered guidance, gave encouragement, shot some of the film at Jemima's school, provided a stock photograph of Alan Shearer, obtained relevant permissions, and wrote the online text. He was a pleasure.

I have, until now, resisted all requests to allow online images of Jemima, for fear that such images may be used by unscrupulous people for dishonourable purposes. I gave much thought to the video images that were to be used in the short film. This has set me thinking about how to portray other aspects of her life and experience. I feel enthusiastic to make a longer film.